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Independence Privilege
23/6/21 00:54I really don't think people realize how little say you have in who you surround yourself with on a daily basis when you have extensive disability support needs
Do you think I chose anyone who worked at my group home? Do I choose the people the agency sends to work for me? Before I became eligible for agency support, and to an extent even today, keeping my family regularly in my life is *not a choice* but something I need to do in order to literally not die
I'm tired of being victim-blamed and told that I need to cut out toxic influences and if I don't, it's somehow my fault. That's not how this works. That's not how any of this works. I accept the help given, from the people who give it, or I die...there are no other options here
Independence is a privilege.
Do you think I chose anyone who worked at my group home? Do I choose the people the agency sends to work for me? Before I became eligible for agency support, and to an extent even today, keeping my family regularly in my life is *not a choice* but something I need to do in order to literally not die
I'm tired of being victim-blamed and told that I need to cut out toxic influences and if I don't, it's somehow my fault. That's not how this works. That's not how any of this works. I accept the help given, from the people who give it, or I die...there are no other options here
Independence is a privilege.
Oh another update from a year ago, but since I literally never post here anymore seems pertinent to those who only check here and not Facebook: I had Covid very early-on in the pandemic, before there were any sorts of treatments or anything, almost died, and now can add long-haul Covid to my evergrowing list of ailments! Hooray!
So alongside grad school applications, and trying to sort out housing, and get used to the world existing again after a year in strict medically-induced quarantine...also setting up a new team of medical providers, new set of meds and treatments, and trying to sort out my VNA and PCA and the rest of my care team after they were unable to work for me during the pandemic. Life is very busy and pretty stressful, but at least it never ceases to be interesting?
So alongside grad school applications, and trying to sort out housing, and get used to the world existing again after a year in strict medically-induced quarantine...also setting up a new team of medical providers, new set of meds and treatments, and trying to sort out my VNA and PCA and the rest of my care team after they were unable to work for me during the pandemic. Life is very busy and pretty stressful, but at least it never ceases to be interesting?
Is this thing still on?
22/6/21 19:30Hi ho, hi ho. I mostly post on Facebook but I miss the days of LJ angst, and angsting on Facebook can get weird. So I'm trying this out
*taps mic* anyone still read this thing?
State of the Nikki: pandemic was hell, interpersonal drama has also been pretty hellish, but I'm currently focusing my energies on applying to SLP school and hoping something comes of that. I've been wanting to be an SLP for years, also wanting to move to New Jersey for years and this would allow me to do so fairly easily (by living in the graduate dorms until I make enough connections to find a roommate/apartment)
This is exciting! And terrifying. But also exciting!
My backup plan though is to keep taking courses at my current institution and remaining in Watertown until I can apply again. And keep teaching English as a Second Language remotely to Chinese kids (oh yeah, this is something I picked up during the pandemic when I couldn't nanny in person anymore, and I've learned that I love it!)
(Obviously using my Garden State icon for this lol. New Jersey has a special place in my heart since I lived there many moons ago and still have chosen family there)
*taps mic* anyone still read this thing?
State of the Nikki: pandemic was hell, interpersonal drama has also been pretty hellish, but I'm currently focusing my energies on applying to SLP school and hoping something comes of that. I've been wanting to be an SLP for years, also wanting to move to New Jersey for years and this would allow me to do so fairly easily (by living in the graduate dorms until I make enough connections to find a roommate/apartment)
This is exciting! And terrifying. But also exciting!
My backup plan though is to keep taking courses at my current institution and remaining in Watertown until I can apply again. And keep teaching English as a Second Language remotely to Chinese kids (oh yeah, this is something I picked up during the pandemic when I couldn't nanny in person anymore, and I've learned that I love it!)
(Obviously using my Garden State icon for this lol. New Jersey has a special place in my heart since I lived there many moons ago and still have chosen family there)
